bubbles. July 24, 2008
they come in many shapes and sizes. i first think of blowing bubbles with the girls and being mezmorized just watching them track and pop and play with them.
there are other kinds of bubbles, too. for instance, i live in one. it is filled with my amazing family and friends, a network that i can truly know i can count on, for a lifetime. it has taken me almost 37 yrs to find this level of trust, unconditional love, and support, and i couldn’t be more thankful. i’ve had to cut out many toxic people in my life, and finally. . . i truly feel at peace with it.
just in that moment, that i find peace, within my bubble, one of my oldest friends’ bubble has just burst. or life as she knew it. her middle son, tanner, who is just now 3 years old has been diagnosed with a very rare [i'm talking his case is the 5th reported in the entire WORLD] and potentially fatal disease, called Juvenile Xanthrogranuloma (JXG). it’s a skin disease that manifests itself as lesions and can occur on various areas of the body. it is a rare condition, in and of itself, however, tanner’s condition is critical because his granulomas are in his airways, causing his lungs to partially collapse. normally, this condition where the lesions are found on the skin, goes away in 3-5 years on its own. this is day 17 he has been airlifted to stanford, and all we can do is pray.
please, join me in saying a special prayer for tanner.
blessings,
erin



